Member Details
Organization: Adrenal Insufficiency United
Title: Director
About Me:
Kerri Engebrecht lives with her husband and younger son in Knoxville, TN and was introduced to the rare disease world in December of 2015 when her son was diagnosed with Addison's Disease. Since then she has worked on advocacy at every level. She worked for county EMS guidelines to protect her son and others with adrenal insufficiency 4 months after his diagnosis and began supporting other parents of newly diagnosed children with all forms of adrenal insufficiency. Joining the board of Adrenal Insufficiency United in 2022 as parent liaison and became Director in January 2024. In addition to her adrenal insufficiency work she is Tennessee's Community Engagement Ambassador for NORD's Rare Action Network, a member of the Patient Senate of Patient's Rising, Member of International Adrenal Consortium, Ambassador for Association for Frontotemporal Degeneration, and Co-Chair for QPM Battelle E&M Primary Prevention Committee. In her spare time she is active with her church and enjoys watching sports of all kinds with her husband.
Interests:
- board_management
- fundraising
- grant_writing
- medical_edu
- networking
- policy
- volunteers
Affinity Groups:
- Fundraising & Communications
- Medical Research & Education
- Organizational Management
- Volunteer Mobilization & Advocacy