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Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 28th. The National Organization for Rare Disorders (NORD) is the trusted voice of the more than 30 million Americans […] |
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Gorlin Syndrome Alliance Research Grant – Application Deadline, March 1, 2026 The Gorlin Syndrome Alliance (GSA) is proud to share our 2026 Research Grant, and invites research proposals designed to improve quality of life for individuals affected by Gorlin syndrome (GS). What makes this grant unique? It is driven by patient priorities and perspective, identified […] |
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation’s Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to […]
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation’s Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to […] |
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